Friday, February 10, 2012 Issue 14   VOLUME 1 ISSUE 14  

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Issue 13
October 25, 2004
Vol. 1 Issue 13

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WE MOVE Wants to Hear From You!

At WE MOVE, we are continuing our efforts to improve the health literacy of people with movement disorders and of their caregivers and family members. To do so, we are asking a series of questions to help us understand how you currently find medical information and then to determine how we can help improve the process. By clicking on this link to our web site and answering the question on this week's poll, you will help us answer the question “Please think back to the most recent visit with your doctor about your movement disorder or that of your family member. How would you rate your level of understanding of what the doctor told you about your or your family member's condition or treatment?” Please check the web site often and help by answering the poll question of the week.

 
Sudden Onset of Sleep in Parkinson’s Disease
According to a study conducted in Germany, 42.9% of the people with Parkinson’s disease who responded to a survey have had a sudden onset of sleep. Ten percent of these people with a sudden onset of sleep denied feeling sleepy before they actually fell asleep
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Family History and Adult-Onset Primary Dystonia
Recent research has provided evidence that dystonia in adults may be inherited. It is important that people accurately report whether or not their family members have dystonia for two reasons: (1) so that doctors can order genetic testing or determine the likelihood that other family members might develop dystonia and (2) to allow researchers to correctly identify cases of dystonia in their studies.
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Visit PDtrials.org for the Latest Information on Clinical Trials for Parkinson's Disease
PDtrials.org is a new web site developed by Advancing Parkinson's Therapy. This site lists studies (also known as clinical trials) that are actively looking for people to participate in testing new treatments for Parkinson’s disease. The trials are sponsored by federal agencies, private industry, and institutions. Advancing Parkinson’s Therapy is a new program led by Parkinson’s Disease Foundation in association with American Parkinson Disease Association, Inc.; Parkinson’s Action Network; The Parkinson Alliance; The Michael J. Fox Foundation for Parkinson’s Research; National Parkinson Foundation; and WE MOVE. For more information, visit PDtrials.org.

 
The Treatment of Voice Tremor with Botulinum Toxin Type A (BOTOX)
Researchers in Arizona treated 13 patients with voice tremor with injections of botulinum toxin type A (BOTOX) into the vocal cords. All patients had a positive response to therapy, with an initial response at 2.3 days and further improvement through the end of the evaluation period (6 weeks after the injections).
[FULL STORY]
 


  WE MOVE News is supported by an educational grant from the Medtronic Foundation.

Published by WE MOVE
Copyright © 2004 WE MOVE. All rights reserved.
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Judith Blazer, Executive Director  
Joy B. Leffler, Director of Education
Cate Murray and Richard Robinson, Medical Editors

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