Primary Immune Tribune
December 2015
IDF Wishes You a Happy Holiday!
View Our Holiday Greeting

Season’s greetings and best wishes for the New Year from IDF!

Your Support Matters, Now More Than Ever
Make Your Donation for IDF's 35th Anniversary

During our 35th Anniversary year, we are reminded of how far the Foundation has come since 1980 because of the support and generosity of our community. Through a gift to IDF, you help us provide resources and services to thousands living with primary immunodeficiency diseases.

Click here to make your gift, and thank you in advance!

The 2015 IDF Health Insurance Survey Is Here!
Take Part and Share Your Perspective

The 2015 IDF Health Insurance Survey was recently sent via e-mail. If you received an invitation asking you to complete the survey, please click the link provided at the end of the email to participate. The information you provide will better inform and guide IDF efforts as we work to improve healthcare delivery to our community. Your thoughtful and honest responses are very important!

Please contact IDF if you have any questions: 800-296-4433 or

IDF Walk for PI Raises More Than $990,000
Three New Sites Announced for 2016

IDF Walk for Primary Immunodeficiency was simply awesome in 2015! Over 3,200 walkers participating on 372 teams in 11 cities raised over $430,000. Combined with the generous support of our sponsors, our grand total is over $990,000. Thank you to everyone who took part!

We would like to extend a special thank you to our Order of the Zebra members. These 85 members made the greatest impact on the success of each walk by raising $1,000 or more. They went above and beyond to ensure that IDF is able to continue to provide resources to the PI community.

Registration for our 2016 sites will open soon! We will add Atlanta, Charlotte, NC and St. Louis to our existing sites of: Boston, Chicago, Cleveland, Fort Lauderdale, Houston, Los Angeles, Minneapolis, New York City and Philadelphia. If there isn’t a walk near you, we encourage you to reach out to to learn more about our volunteer-led community walk program!

Fighting the 40% - What You Need to Know about the “Cadillac Tax”

The Immune Deficiency Foundation (IDF) values the protections offered to those living with chronic illness as a result of the Affordable Care Act (ACA) and is working to ensure those protections are not threatened by the implications of the Cadillac Tax. This tax, a part of the ACA that will begin in 2018, is an annual 40% excise tax on “high-priced” employer-sponsored health insurance plans, instituted with the goal to help improve savings and reduce costs within the U.S. healthcare system. The drafters of this legislation assumed, at the time it was passed, that this tax would affect only very high-priced “Cadillac” or “luxury” employer sponsored healthcare plans. Unfortunately, the tax will cause plans to shift more costs to employees and their dependents and will impact the plans of retirees, families of average incomes, and many others with chronic diseases, such as primary immunodeficiency diseases.

IDF has been outspoken in opposition to this tax, and we join public and private sector employer organizations, consumer groups, patient advocates, unions, healthcare companies, and businesses to urge Congress to fully repeal this tax.

Click here to learn more about Cadillac Tax.

IDF Teen Escapes 2016 – Save the Date!
Chicago, IL and Charlotte, NC

Chicago, IL (Northbrook)
July 16-17, 2016
Renaissance Chicago North Shore Hotel

Charlotte, NC
July 30-31, 2016
Charlotte Marriott City Center

IDF Teen Escapes are weekend getaways exclusively for teens, ages 12-18, who have been diagnosed with a primary immunodeficiency disease (PI). During the weekend, IDF helps teens develop coping skills, promote and nurture friendships and provide educational guidance. While the teens are taking advantage of entertaining and educational activities, parents participate in sessions geared toward their own issues and concerns.

Registration details will be available in spring 2016.

Since You Asked
IDF Question and Answer

Q: I have a calendar year plan, and I still have funds left in my Flexible Spending Account (FSA). I heard you can now rollover any unused amounts. Is this correct? If not how can I use up the remaining amount?

Q: I have CVID and just adopted a dog who had the live Bordetella nasal vaccine the day before I adopted him. He is now showing signs of coughing. Am I susceptible to catching a respiratory infection from Bordetella? The vet’s office said it is very possible I could get sick from this.?

Click FULL STORY to see the answer to these questions.


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Primary Immune Tribune is sponsored by an educational grant from Grifols

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