Primary Immune Tribune
April 2015
Early Registration Deadline Approaching
IDF 2015 National Conference Early Registration Ends April 30

The IDF 2015 National Conference in New Orleans, LA is less than three months away! Join other individuals and families living with primary immunodeficiency diseases (PI), clinicians, life management professionals, industry representatives and others for three days to learn, share ideas and discover the latest about PI. IDF is looking forward to bringing together the PI community for an unforgettable event so register today!

CLICK HERE to register by April 30 to receive the early registration rate.


First PI CONNECT Research Forum Webinar
Join the Conversation with Researchers

The Immune Deficiency Foundation (IDF) will be hosting its first ever PI CONNECT Research Forum Webinar on Thursday, April 23 from 8-9 p.m. EDT, focusing on Less Common Aspects of Common Variable Immune Deficiency (CVID).

This webinar allows individuals with PI to take part in the research conversation and pose questions directly to researchers about CVID, and it is available exclusively to PI CONNECT Research Forum users.

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Create a Team for IDF Walk for PI

Gather your family, friends, co-workers, neighbors, and anyone you can think of to create a team for the IDF Walk for PI! Walk teams have the ability to make the greatest impact!

Donít miss your chance to be a part of this historic experience as we strive to reach our goal of $1 million. All walkers who raise $100 or more will receive a free Walk for PI t-shirt at the walk, and a variety of other incentives are available for those who raise more.

If you raise $1,000 or more prior to the IDF 2015 National Conference, you can earn a refund of your conference registration fee and be recognized as one of the walkís top fundraisers as a member of the IDF Order of the Zebra. Once $1,000 has been recorded on your individual fundraising page (not your team page), IDF will be automatically notified. Funds must be recorded on your page by June 22, 2015 in order to qualify for the registration fee reimbursement.

Register for the IDF Walk for PI today!

2015 Sites: Boston, Cleveland, Greater Chicago, Fort Lauderdale, Houston, Los Angeles, Minneapolis, New York City, Philadelphia

Donít live near one of our physical sites? Take part in our Virtual Walk!

2015 Community Walk: Charlotte, NC, and others coming soon!

Team Captains make sure you stop by our walk booth in the Exhibit Hall at the National Conference to receive a special gift!


THINK ZEBRA! Silent Auction Bike Raffle
Register at www.BiddingforGood.com/idf before April 30

Spring has sprung, the sun is finally shining and we all know what that means... itís bicycle weather! In honor of our favorite time of year (THINK ZEBRA! Silent Auction season), IDF is raffling off a bicycle of your choice!

We want to make sure everyone is ready and registered for our THINK ZEBRA! Silent Auction at the IDF 2015 National Conference. After all, you don't need to be at the Conference to bid, but you do need to be registered at www.BiddingforGood.com/idf

Everyone registered at www.BiddingforGood.com/idf prior to April 30, 2015 will be entered into the raffle to win one of three bikes (special thanks to Soleo Health for donating the bikes). The drawing will be on April 30, 2015. The winner will be announced via IDF social media and receive an email. Will you pick the adult zebra-striped Huffy, the Pretty Pretty Princess bike, or the Alpha Bravo army bike? Good Luck!

Terms: Must reside within the continental US. One entry per registration. Open to adults 18+. IDF will contact the winner and ship it to the address they have provided on www.BiddingforGood.com/idf.

Still Accepting Great Silent Auction Items

Thank you to those who have already contributed an item to the THINK ZEBRA! Silent Auction which will be held at the IDF 2015 National Conference. We are excited that our online auction site is already generating submissions that will help us raise funds in support of IDFís mission. To make this fundraising event as successful as possible, we need your help in securing even more items that (1) people will want to bid on and (2) you can easily ship to IDF or bring to the conference (if youíre attending). If you have a great item to donate that has a value of at least $25, please CLICK HERE. If you have any questions, please e-mail development@primaryimmune.org. Thank you!


IDF Academic Scholarship Programs
Deadline to Apply - May 1

IDF is honored to award scholarships to students living with primary immunodeficiency diseases who plan on completing their post-secondary education.

The Eric Marder Scholarship Program is open to patients with a primary immunodeficiency as classified by the World Health Organization and is intended for undergraduate students attending or entering college or a technical training school.

The Varun Bhaskaran Scholarship Program is for undergraduate or graduate students living with Wiskott-Aldrich Syndrome (WAS).

The online application for both scholarship programs requires uploading the following documentation:

  • Autobiographical essay
  • Letter from an immunologist verifying your primary immunodeficiency disease
  • College acceptance letter
  • References from two people who are not relatives
  • Free Application for Federal Student Aid (FAFSA) NOTE: The FAFSA needs to be for the 2014 tax year. A FAFSA from a previous year will NOT be accepted.

The online application for both scholarship programs will be accepted until May 1, 2015 on the IDF website: http://primaryimmune.org/services/idf-academic-scholarship-programs/. The scholarships will be awarded in June 2015.


Since You Asked
IDF Question and Answer

Q: Am I eligible to use Family & Medical Leave Act (FMLA) for my childís infusions?

Q: My 6-year-old daughter was just diagnosed with a primary immunodeficiency disease. How can I help her to understand her illness and not feel so alone?

Click FULL STORY to see the answer to these questions.


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