Primary Immune Tribune
December 2014
Happy Holidays from IDF!
View Our Holiday Greeting

Warmest greetings and best wishes for the New Year from IDF!

Support the Immune Deficiency Foundation
There's Still Time to Make a Gift

As 2014 comes to a close, thank you for remembering IDF in your year-end giving. You can transform lives, right now, with your gift and help IDF provide resources and services to the thousands who live with primary immunodeficiency diseases.

Click here to make your gift, and thank you in advance for your continued support!

Create an Account Today!

The Immune Deficiency Foundation (IDF) is revolutionizing how patients with primary immunodeficiency diseases (PI) can improve their health and help power research with the new IDF ePHR, the electronic personal health record specifically designed for the PI community, and PI CONNECT, the IDF Patient-Powered Research Network.

IDF ePHR features easy-to-use tools to help patients manage their health and organize their information at no cost to users. Users can track health and fitness goals, set reminders and notifications, and they can access IDF ePHR from anywhere—computer, tablet or phone. Medical information is safe, secure and private.

And when users create an IDF ePHR account, they may join PI CONNECT, the IDF Patient-Powered Research Network. PI CONNECT joins the information patients enter in IDF ePHR with the United States Immunodeficiency Network (USIDNET) patient-consented registry, containing clinical data on several thousand patients with PI.

To learn more, or to get started now, visit!

Register for the Patient Notification System (PNS)

Over a decade ago, the Plasma Protein Therapeutics Association (PPTA) and its members, working in collaboration with consumer organizations, developed a first-of-its-kind Patient Notification System (PNS). This model notification system is a rapid web-based tool that empowers patients with information about their medicines and is also available to physicians, nurses and pharmacists. All you need to do is sign up!

Register at The PNS is a great source of trustworthy information; it provides confidential notification of therapy withdrawals and recalls. There is no charge to register.

Since You Asked
IDF Question and Answer

Q: The end of the year is fast approaching and I still have funds available in my health Flexible Spending Account (FSA). Is it correct that if I do not use the funds I will lose them? How can I use up the remaining balance?

Q: I have CVID and am looking to make dietary changes to help boost my immune system. What kind of changes should I start with?

Click “FULL STORY” to see the answer to these questions.


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Primary Immune Tribune is sponsored by an educational grant from Grifols

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