Primary Immune Tribune
February 2013
Registration is Now LIVE!

CLICK HERE to register now!

Visit IDF's conference website at www.idfnationalconference.org

For questions about registration, e-mail
conference@primaryimmune.org or call 414.918.3022



Register Now for IDF Teen Escape
Hurry! Space is Filling Quickly!

IDF invites all preteens and teens, ages 11 to 18, diagnosed with a primary immunodeficiency disease to an IDF Teen Escape! This exciting, free event is scheduled on March 16-17th at the Crowne Plaza Orlando Universal in Orlando, Florida.

The IDF Teen Escape weekend is an opportunity to acquaint preteens and teens diagnosed with a primary immunodeficiency with others like themselves. This weekend is filled with fun activities designed to promote friendship, build leadership skills and develop coping abilities. Age appropriate sessions will be presented by medical and life skills experts, which encourage the attendees to discuss what it means to live with a primary immunodeficiency with other participants in addition to focusing on transition and advocacy issues. There will be separate parent sessions that offer opportunities for parents to network and share ideas.

CLICK HERE for more information or to register now for the IDF Teen Escape in Florida, March 16-17, 2013. For questions, call call 410-321-6647, or e-mail idfteenprogram@primaryimmune.org.

The IDF Teen Escapes are supported by charitable donations from Baxter Healthcare Corporation, CSL Behring and Grifols.


THINK ZEBRA! 2013
Earn up to Three Free Hotel Nights at the National Conference

IDF is pleased to announce the online launch of THINK ZEBRA! 2013, our fundraising and awareness initiative.

This year, for the first time, you can participate in THINK ZEBRA! online and easily raise funds and promote awareness through your very own Personal Campaign Page.

Creating a Personal Campaign Page only takes a few minutes. Once it's up and running, you can then e-mail friends, neighbors, and family members about your connection to IDF, and start raising money.

Those who fundraise on behalf of IDF through the THINK ZEBRA! campaign may be eligible for the following prizes:

·        Raise $1,000* and you will receive reimbursement for your registration fee for the IDF National Conference.

·        Raise $2,500 – $3,499* and you will receive one free hotel night at the Baltimore Hilton during the Conference, in addition to the reimbursed registration fee.

·        Raise $3,500 or more* and you will receive three free hotel nights at the Baltimore Hilton during the Conference, in addition to the reimbursed registration fee.

To try out your Personal Campaign Page, just click the button below.  If you have any questions, please call 800-296-4433 or e-mail amayberry@primaryimmune.org.

*Funds must be received between January 1, 2013 and Friday, June 28 to qualify



IDF Academic Scholarships
Deadline March 31, 2013

IDF is currently accepting applications for two academic scholarship programs for students living with primary immunodeficiency disease. The Eric Marder Scholarship Program of IDF is open to undergraduate students living with a primary immunodeficiency who plan on completing their secondary education, and the Varun Bhaskaran Scholarship Program of IDF is available to undergraduate or graduate students living with Wiskott-Aldrich Syndrome (WAS).

The deadline to apply for both is March 31, 2013.

CLICK HERE for more information.


Since You Asked
IDF Question and Answer

Q:  When will the pilot program for Medicare patients to receive IVIG at home take place? How can I participate?
 
Q:  My son, who is 14, has been struggling this year accepting all he has gone through, medically (and emotionally) in his young life with CVID and I know he would benefit from meeting other teens facing similar challenges. Where can I find more information for my son and myself?
 
Click "FULL STORY" to see the answers to these questions.

[FULL STORY]



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