Primary Immune Tribune
December 2011
Happy Holidays from IDF
Watch IDF's 2011 Video E-card

Warmest greetings and best wishes for the New Year from the IDF Staff!

CLICK HERE to watch IDF’s Holiday video e-card.

'Tis the Season
Coventry Healthcare Targets our Patients

While hunters go after various game this time of year, it seems that some health insurance companies go after vulnerable patients – especially those with rare and chronic diseases. This season patients with primary immunodeficiency diseases who are members of Coventry Health Care and its subsidiaries in Pennsylvania, Missouri and Illinois seem to be the primary target.  CLICK HERE to read more at 

Insurers Are Not Doctors is Gaining Traction
Thanks for the Support!

As IDF advances its Insurers Are Not Doctors initiative in opposition to Coventry Health Care’s restrictive single Ig product formulary, it is good to know that we are not alone!  The primary immunodeficiency community is picking up support from other patient organizations and providers for its efforts.


Help IDF Make a Difference
Wear Your Zebra Pin with Pride

It’s that time of year again – time to help IDF make a difference in our community through your gift to the annual fund!

And this year, in recognition of the 150+ primary immunodeficiency diseases, if you contribute $150 or more, you’ll receive a tasteful black and white cloisonné lapel pin.  This zebra ribbon pin will promote awareness in your community every time you wear it!


XLA Important Research
XLA Patient Survey Now Live

If you are a patient with, or the parent of a child under the age of 18, who has been diagnosed with X-linked agammaglobulinemia (XLA), we need your participation in this important survey.  We hope this survey data will result in better patient health for those with XLA.


The survey should only take 10 to 15 minutes to complete, your answers are completely confidential, and none of your answers will ever be shared outside of the IDF Survey Research Department.

If you are interested in participating, please Click Here to Take Survey.  If you have any questions, or concerns regarding this survey, please call the IDF at 800-296-4433 and ask for the Director of Survey Research.

Make your New Year’s Resolutions for 2012
Register for IDF eHealthRecord

Getting started with the new IDF eHealthRecord should be at the top of your list!  Now is the time to get your medical information organized in one place.


This electronic personal health record was designed especially for you with input from patients with primary immunodeficiency diseases, their families and immunologists.  If you have access to a computer you can create your health record today and enter information as time permits. And you can create health records for your entire family under one account at no cost.


Security measures keep your records safe, secure and ready for when you need them.  What are you waiting for?  Sign-up today!  Visit to get started now.

IDF & USIDNET LeBien Visiting Professor Program
Accepting Requests for 2012

IDF is currently accepting Letters of Request for the IDF & USIDNET LeBien Visiting Professor Program for 2012.  The purpose of this program is to increase knowledge about the diagnosis and treatment of patients with primary immunodeficiency diseases.  It is available at no cost to teaching hospitals throughout the United States.  We hope that you will consider applying and we believe your medical education program will benefit by having a leading clinical immunologist lead grand rounds and other educational activities.
If you are interested in participating in this exciting program, please send a brief (one page) letter to the Immune Deficiency Foundation, Attn:  IDF & USIDNET Visiting Professor Program, 40 West Chesapeake Ave. Suite 308, Towson, MD 21204 or email IDF's Director of Program Services at by January 15, 2012, stating your desire to participate in the program.  The letter should include a tentative list of teaching activities and information on how your training program would benefit from a visiting professorship.
Please direct any questions to IDF at 800.296.4433 or

Since You Asked
IDF Question and Answer

Q:  The end of the year is fast approaching and I still have funds available in my health Flexible Spending Account (FSA).  Am I correct that if I do not use the funds I will lose it?  If so, how can I use up the remaining balance?


Q:  I have heard about several outbreaks of Whooping Cough.  This seems to be a serious respiratory infection.  As an elderly patient with CVID, is it vital that I have this booster vaccine, and is it safe for me to receive it?

Click "FULL STORY" to see the answers to these questions.


IDF Calendar of Events

Click Here to View IDF's Calendar of Events

Click here to subscribe to the IDF eNewsletter

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