Primary Immune Tribune   Primary Immune Tribune
  E-newsletter of the Immune Deficiency Foundation

June 2008 VOLUME 2 ISSUE 8  

Action Alert!
Attention Teaching Hospitals!
Burst the Bubble Benefit
Since You Asked
IDF Calendar of Events
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May 2008
May 7, 2008
Vol. 2 Issue 7
April 2008
April 8, 2008
Vol. 2 Issue 7
March 26, 2008


Action Alert!
Act NOW, Not Later!

The Senate Finance Committee is negotiating a new Medicare package right now that must be completed by the end of June.  Now is the time to urge your Senators to include a fix to the IVIG access and reimbursement issue in the upcoming package.  Get on the phone, get on line and get the word out.  Urge your Senators to talk to Chairman Baucus and Senator Grassley of the Senate Finance Committee.  It is absolutely necessary that S.2990 be included in the Medicare package this June.  Spread the word to family, friends, Medical professionals and members of your local community.  Working together we will be heard!

Insufficient reimbursement for IVIG is a serious problem affecting more and more patients every day, and Congress needs to hear about it!

IDF would like to thank all of you who got on-line and got active using the IDF Action Alert.  Since the introduction of the S. 2990, The Medicare IVIG Access Act, on May 7, 2008, there have been over 900 letters sent to the policymakers on Capitol Hill, and your efforts are already yielding results!  Senators Ron Wyden (D-OR), Sheldon Whitehouse (D-RI) and Evan Bayh (D-IN) have all signed on to cosponsor the bill.

But the fight is not over.  
CLICK HERE to contact your Senators NOW! 


Attention Teaching Hospitals!
Letters of Request for LeBien Visiting Professor Program due June 30

The Immune Deficiency Foundation, in partnership with the United States Immunodeficiency Network, is currently accepting letters of request for the LeBien Visiting Professor Program from teaching hospitals for the academic year 2009-2010.


Burst the Bubble Benefit
"So You Think You Can Dance?" Winner to Perform

Saturday, June 7, Sabra Johnson, winner of “So You Think You Can Dance” will perform as part of the “Burst the Bubble benefit” at the Smith Opera House in Geneva, NY.
The benefit raises awareness of primary immunodeficiency disease and includes performances by local Geneva dancers. Proceeds will go to the Immune Deficiency Foundation.
Tickets are $25 for adults and $20 for seniors, students and children. They are available at Wegmans stores and the Smith Opera House, 82 Seneca St., Geneva, NY.
For more information, contact Jill Kelley at or 585-396-7317.


Since You Asked
IDF Question and Answer

Q:  I have been sick since I was a child with sinus problems. I have also had pneumonia several times and it seems that when I get a cold, it takes me months to get over it.  I am 43 years old and was recently diagnosed with a primary immunodeficiency disease.  I read in the IDF Patient and Family Handbook that these disorders are genetic.  Is it possible that I could have had this disease my whole life?


Q:  My son will be graduating in May from college.  He is currently covered under my husband’s insurance from his work. According to the insurance, he will lose his insurance at the end of the month that he graduates. While he is interviewing for jobs can he have COBRA coverage?


Click on "Full Story" to learn the answers to these questions.


IDF Calendar of Events

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