Primary Immune Tribune   Primary Immune Tribune
  E-newsletter of the Immune Deficiency Foundation

November 2006 VOLUME 1 ISSUE 2  

Contents
IDF Survey Helps Persuade CMS
IDF Center of Excellence
IDF on Capitol Hill
Online Shopping for Fun and IDF
IDF Family Retreat - November 17-19
Since You Asked...
IDF Events Calendar
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Archive
Issue 1
October 2, 2006
Vol. 1 Issue 1

IDF Survey Helps Persuade CMS
CMS Stops Reductions for IVIG Medicare Payments

The Immune Deficiency Foundation patient survey helped persuade the Centers for Medicare and Medicaid Services to issue final rules that grant a critical reprieve for patients with primary immune deficiency diseases.
[FULL STORY]
 

IDF Center of Excellence
Dedicated at Duke University

A special dedication ceremony was held at Duke University Medical Center for the opening of the Duke IDF Center of Excellence for Primary Immunodeficiency Diseases.
[FULL STORY]
 

IDF on Capitol Hill

Immune Deficiency Foundation retains Hart Health Strategies to represent patients with primary immune deficiency diseases on Capitol Hill and before the administration.
[FULL STORY]
 

Online Shopping for Fun and IDF

If you are already an online shopper, or if you plan to shop online this holiday season, please consider visiting one of the following Web sites. These sites will donate a small portion of the purchase price of your order to the IDF, and it doesn’t cost you anything!
[FULL STORY]
 

IDF Family Retreat - November 17-19
Last Chance to Register!!

Whether you are a newly diagnosed patient or have been living with a primary immune deficiency disease for years, IDF family retreats offer something for everyone in your family.
[FULL STORY]
 

Since You Asked...

Q: I can’t get insurance. How can I find out if my state has a high risk pool? If not, how do I find out about other state programs that might help me?

Q: I have CVID. I am deficient in all areas but the worst is IgG. Is there any chance that taking vitamins or herbal supplements (i.e. garlic etc) could be effective or most likely not helpful in this area?

Click on "Full Story" to see the answers to these questions
[FULL STORY]
 

IDF Events Calendar

Click to see a listing of upcoming IDF events.
[FULL STORY]
 

Primary Immune Tribune is sponsored by an educational grant from Talecris Biotherapeutics


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