Primary Immune Tribune
March 2017
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CONTENTS
Nutrition & Immunity Webinar
On Medicare and Using SCIG?
Wanted: Great THINK ZEBRA! Silent Auction Items
Seeking People with WHIM Syndrome
Coming Soon: Survey of Zoster, Varicella and Influenza
IDF Calendar of Events
Top 9 Reasons to Attend the IDF 2017 National Conference

Why should you be a part of the IDF 2017 National Conference? There are so many reasons to take part in the world’s largest gathering of people with primary immunodeficiency diseases (PI), but because it’s our 9th conference, we have 9 reasons for you to make sure you don’t miss this life changing event!

9. Memorable Special Events - Night at Disneyland! 
Enjoy spectacular special events and entertainment to bring the IDF community together, including the Welcome to California Reception, IDF Zebra Gala, Closing Session & IDF Family Night at Disney. Yes, we are all going to Disneyland on Saturday night! These are ticketed events, and we want to see you there! Please make sure to register for these fun filled events when you complete online registration: www.idfnationalconference.org/register

8. Interactive IDF Exhibit Hall
Want to learn about the latest products and services available to the PI community? The IDF Exhibit Hall is the place to be! Companies and organizations can show you what’s new and what’s available to help manage living with PI. Just like in the past, visiting all the participating exhibits can put you in the running to win an iPad! Click here for a list of participating exhibitors.

7. Fantastic THINK ZEBRA! Silent Auction Items
If you are looking for a special keepsake and want to support IDF, you will find fantastic choices at the THINK ZEBRA! Silent Auction, on Friday night. Items for the auction are donated by generous and resourceful members of our community. Successful past items have ranged from custom-made quilts and electronic gadgets, to family-fun gift baskets and of course anything with zebra stripes. If you can donate an auction item, go to www.biddingforgood.com/THINKZEBRA, and click on “Donate Items” to learn more.

6. For Healthcare Professionals - Professional Medical Education Program
Healthcare professionals can learn the latest information about PI from expert immunologists during the Clinical Immunology Society (CIS) Professional Medical Education Program: Updates in Primary Immunodeficiency Disease for the Practicing Clinician. This program is offered Saturday during conference hours and covers a wide variety of topics including therapies, clinical presentations, and an expert panel for Q&A. Click here for more information.

5. IDF Youth Program - Education & Fun for All Ages!
Bring the whole family, and sign your children up for the IDF Youth Program! They will participate in fun educational activities throughout the conference. This program is exclusively for children and teens diagnosed with a PI or who have an immediate family member with PI. They will be divided, by age, into the following groups: Childcare (ages 6 months – 4 years), Kid’s Club (ages 5 – 9 years), ‘Tween Scene (ages 10 – 12 years), Teen Program (ages 13 – 18 years). Click here for more about the IDF Youth Program.    

4. Nearly 40 Healthcare & Life Management Presentations
Choose from nearly 40 sessions to attend—there is something for everyone! World-renowned healthcare professionals and life management experts will share their time and expertise to help you better understand and manage your PI. Click here for the complete conference schedule.

3. New Sessions & Special Symposia 
This year, there will be new and special sessions throughout the duration of the conference. Even if you have attended a conference in the past, there is always something new! These sessions include:

  • Caring for the Caregiver
  • Clinical Trials: What to Consider
  • For Parents: Parenting a Teen or Young Adult Diagnosed with PI
  • NK Cell Deficiency
  • Special CGD, WAS and SCID/SCID Variant Symposia
  • Unspecified Combined Immunodeficiencies with Autoimmunity & Infection

Go to www.idfnationalconference.org to learn about our New Sessions & Special Symposia

2. Learn about Your PI
In addition to the two new disease specific sessions, NK Cell Deficiency and Unspecified Immunodeficiencies with Autoimmunity and Infection, we have sessions for different diagnoses, so you can learn more about your PI!  

  • Common Variable Immune Deficiency (CVID)
  • The Various Hyper IgE Syndromes (HIES)
  • Hyper IgM Syndrome (HIGM)
  • IgG Subclass Deficiency, Specific Antibody Deficiency (SAD) & Hypogammaglobulinemia
  • NK Cell Deficiency
  • NEMO
  • Selective IgA Deficiency
  • Unspecified Combined Immunodeficiencies with Autoimmunity & Infection
  • X-Linked Agammaglobulinemia (XLA)

Special Symposia

  • Special Chronic Granulomatous Disease (CGD) Symposium
  • Special Severe Combined Immune Deficiency (SCID) & SCID Variant Symposium
  • Special Wiskott-Aldrich Syndrome (WAS) Symposium

Click here for the complete conference schedule.

1. Be a Part of Our Community!
No matter where you are in your journey living with PI, you are a valued member of the IDF community, and we want everyone to come together for the IDF 2017 National Conference. This conference could be when you first meet someone else with the same diagnosis, when you learn something new that helps you in your daily life, or when you discover a way you can take action and make a difference for the future of the PI community. Chances are, the conference will be a remarkable experience for you. So register today

IDF 2017 National Conference Registration*
Online registration is available at www.idfnationalconference.org/register. Early registration rates are available until Monday, May 1, 2017. Click here to register

Questions? 414-918-3022 or conference@primaryimmune.org

*If you are unable to register online, please call 414-918-3022 to request a registration form. Registration is available on a first come, first serve basis.

IDF 2017 National Conference Sponsors

Legacy Sponsors
CSL Behring
Grifols
Shire

Silver Sponsors
AmerisourceBergen Corporation
Horizon Pharma
Leadiant Biosciences
Octapharma


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