Primary Immune Tribune   Primary Immune Tribune
  E-newsletter of the Immune Deficiency Foundation

November 2006 VOLUME 1 ISSUE 2  

IDF Survey Helps Persuade CMS
IDF Center of Excellence
IDF on Capitol Hill
Online Shopping for Fun and IDF
IDF Family Retreat - November 17-19
Since You Asked...
IDF Events Calendar
Since You Asked...

Do you have a question about IDF programs or services?  Are you searching for more information related to diagnosis, treatment, or management of primary immune deficiency diseases? We invite you to send any questions you may have to and some will be published and answered in upcoming editions. Read on to see the answers that were provided to some recently submitted questions.

Q:  I canít get insurance.† How can I find out if my state has a high risk pool? If not, how do I find out about other state programs that might help me?
A:  A high risk pool program offers health coverage for persons who are HIPAA eligible and have expensive health conditions but who are unable to buy individual coverage. To find out if your state has a high risk pool or any other programs that you are eligible for, you can go to All you need to do is choose a state and print out A Consumer Guide for Getting and Keeping Health Insurance. This Web site is produced by The Georgetown University Health Policy Institute. They have written Consumer Guides for each state and the District of Columbia ó fifty-one in all. These Consumer Guides are available at this Web site and will be updated periodically as changes in federal and state policy warrant.
The Guides summarize your protections, and so may not answer all of your questions. They are not a substitute for legal, accounting, or other professional advice. Please consult a qualified expert before making any decisions about your own health insurance. The authors, the Health Policy Institute, and Georgetown University specifically disclaim any personal liability, loss or risk incurred as a consequence of the use and application, either directly or indirectly, of any information presented herein.
Q:† I have CVID.  I am deficient in all areas but the worst is IgG.  Is there any chance that taking vitamins or herbal supplements (i.e. garlic etc) could be effective or most likely not helpful in this area? 
A:† There is no evidence that herbal or vitamin supplements are effective in reversing CVID.  In general a good balanced diet should provide enough vitamins, but many physicians recommend taking a multivitamin tablet daily as well.

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