August is the perfect time to have a meeting with your Representative or his/her staff as the House of Representatives is on August Recess for a district work period until September 13, 2010.  During this time, Members of Congress attend meetings and events, participate in Town Hall meetings, and campaign for the upcoming election.  Take advantage of this opportunity to meet with your Representative on HR 5597!

Register online now for the IDF Teen Escape in Atlanta, GA, November 13 & 14!

The IDF Teen Escape weekend is an opportunity to acquaint teens diagnosed with primary immunodeficiency diseases (PIDD) with others like themselves. This weekend is filled with fun activities designed to promote friendship, build leadership skills and develop coping skills.

Medical and life skills experts will present valuable information to the teens as well as encourage them to discuss what it means to live with a PIDD with other participating teens. Sessions for teens are scheduled that focus on transition and advocacy issues. Saturday morning even offers information for parents and guardians!

The 2009 IDF Highlights are now available.  The 2009 IDF Highlights piece is a summary of IDF activities, programs and initiatives from 2009.  CLICK HERE to access the downloadable version on the IDF Publication page, or order as many copies as you would like by contacting IDF at 800-296-4433 or idf@primaryimmune.org. 

Consumers of IVIG, which is a plasma protein therapy, will learn exactly how federal health care reform will affect you and your access to the therapy you need.

The first program in this new webinar series is August 19, 2010 at 2:00 p.m. (Eastern) and will examine high-risk pools for individuals with pre-existing conditions, like the consumers of plasma protein therapies who have rare, chronic diseases and conditions. This program also will cover which insurance plans must comply with the health reform law and what that may mean to you. You will have the opportunity to interact with presenters and ask questions about how the law may affect your access and insurance coverage.

Q.  I have been living with CVID for ten years and lately have been considering becoming involved in a clinical trial. I don’t know where to start—how do I find out about good ones? Does IDF recommend any?

Q.  I don't know anybody else who has PIDD and would love to talk with others who can understand what I go through! I know IDF has patient meetings and support groups, but I live hours away from even a small city, so there hasn't been any opportunity to attend any of them. Any suggestions to help me not feel so isolated?

Click on "Full Story" below to learn the answers to these questions.

Click Here to View IDF's Calendar of Events