Register Now!
A Weekend of Discovery, Learning and Fun!
Registration is now open for IDF Retreats. CLICK HERE for more information, or to register today!
IDF Retreats are for everyone in the primary immunodeficiency community-- patients, parents, siblings, children and partners. Whether you are newly diagnosed or have been living with a primary immunodeficiency disease for years, IDF Retreats offer an opportunity to connect with others to learn more about dealing with your disease. Leading physicians and healthcare professionals will present the latest information about the treatment and management of primary immunodeficiencies. Life management and everyday concerns will be featured in panel discussions led by experts in their fields. The youth and teen programs offer both education and fun, and are designed to help the younger members of our community better manage their diseases.
Perhaps, most importantly, these weekend gatherings offer an atmosphere to build relationships with others who share common experiences, therapies and feelings. So, come connect with the IDF Community and have some fun while developing better approaches to living with primary immunodeficiency. CLICK HERE for more information, or to register today!
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SCID: A Guide for Parents Following Diagnosis
New IDF Brochure
 IDF is pleased to announce the availability of a new educational handout for parents who learn that their child has been diagnosed with SCID. States can utilize this brochure as part of their follow up materials for parents, and it is also available to any individuals who wish to use it. This guide will dispel any misconceptions about SCID and provide insight for parents about the next steps to take and the need for early treatment. This brochure accompanies an IDF handout that helps parents who learn that their child has received an abnormal test result from the TREC test. CLICK HERE to access both materials on the Publications section of the IDF website.
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IDF Zebra Ribbon Pins
Order Some Today!
 Promote awareness of IDF and primary immunodeficiency diseases with your very own Zebra Ribbon Pin! This tasteful black and white cloisonné lapel pin is one inch high and comes complete with a printed explanation of the zebra motif, as well as IDF’s website address. Perfect for gift-giving! CLICK HERE to order one today!
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IDF Blogs!
5 Ways to Stay Informed
IDF now has five blogs to keep you informed! From learning more about IDF’s public policy campaigns to celebrating the accomplishments of our volunteers and community, our blogs keep you current and invite you to join in the conversation. Read the articles, and add your voice to the story by commenting on the posts. If you have a story that you would like included, please reach out to IDF by clicking the CONTACT button at the top of the blogs.
CLICK HERE to visit our IDF Blog “hub page” which includes links to:
IDF Community in Action Blog
IDF Policy Matters Blog
IDF SCID Newborn Screening Blog
IDF Zebra Challenge Blog
IDF Plasma Center Partners Blog
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Take the Zebra Challenge!
Find Ways to Support IDF
What is the Zebra Challenge? IDF challenges everyone to join in our fundraising efforts, and there are many ways to do so! You can donate to IDF, host or participate in a special event, contact friends and family about our THINK ZEBRA! program, or use the personal fundraising page and create your own fundraiser. CLICK HERE to check out our new website section dedicated to the Zebra Challenge!
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IDF Plasma Center Partners Program
 Plasma centers throughout the country play a crucial role in the lives of many individuals with primary immunodeficiency diseases who depend on immunoglobulin plasma-based therapy to protect them from life-threatening infections. IDF has enjoyed a strong relationship with these centers and value their commitment to the collection of high-quality plasma and establishing the highest levels of safety and quality assurance.
Our association with plasma center staff members, plasma donors, and our own volunteers who visit the centers has grown strong over the years to develop into the IDF Plasma Center Partners Program. CLICK HERE to visit the new Plasma Center Partners Program section of our website.
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Since You Asked
IDF Question and Answer
Q: At my son’s last immunoglobulin infusion treatment, he started having reactions to the product he was being infused, which he had never experienced before. When I asked his infusion nurse if his product had been changed, she told me that she was not allowed to tell me which product he was receiving. Is this correct?
Q: I am very unhappy with the infusion center where I receive my treatments. Patients have no privacy and when we go in to receive our IVIG, we are set up in chairs about one foot away from each other. We are asked personal questions like our date of birth and weight and I know that everyone can hear. I experience reactions such as chills and vomiting and find it quite embarrassing to have to go through this in front of other patients. Is this common practice at infusions centers?
Click "FULL STORY" to see the answers to these questions.
[FULL STORY]
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IDF Calendar of Events
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