Primary Immune Tribune   Primary Immune Tribune
  E-newsletter of the Immune Deficiency Foundation

February 2010 VOLUME 5 ISSUE 1  

Contents
IDF Praises ACHDNC Recommendation for SCID Screening in Newborns
THINK ZEBRA! at the IDF Retreats
Scholarship Application Now Online
"New Horizons, New Hope"
Put a Face on PIDD!
IDF Calendar of Events
Since You Asked
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Archive
December 2009
December 8, 2009
Vol. 4 Issue 9
November 2009
November 6, 2009
Vol. 4 Issue 8
Flu Information for Patients with PIDD
October 2, 2009

[MORE]

IDF Praises ACHDNC Recommendation for SCID Screening in Newborns

On January 21, 2010, the Advisory Committee on Heritable Disorders in Newborns and Children voted unanimously to add screening for Severe Combined Immune Deficiency or SCID - commonly known as bubble boy disease — to the core panel for universal screening of all newborns in the United States.


[FULL STORY]
 

THINK ZEBRA! at the IDF Retreats
Join us for a Weekend of Discovery, Learning and Fun!

IDF Retreats are for everyone in the primary immunodeficiency community-- patients, parents, siblings, children and partners.

IDF Retreats provide presentations by leading immunologists with the latest information about primary immunodeficiency diseases. Life management and everyday concerns will be featured in panel discussions led by experts in their fields. It is an atmosphere for people to build relationships with others who share common experiences, therapies and feelings. Come connect with the IDF community, build relationships with others, and have some fun while developing better approaches to live with primary immunodeficiency.


[FULL STORY]
 

Scholarship Application Now Online
Apply Today for the Eric Marder Scholarship of the IDF

IDF is honored to award educational scholarships to undergraduate students living with primary immunodeficiency diseases who plan on completing their secondary education. The Eric Marder Scholarship Program is open to patients with a primary immunodeficiency as classified by the World Health Organization and is intended for undergraduate students attending or entering college or a technical training school.


[FULL STORY]
 

"New Horizons, New Hope"
1st Wiskott-Aldrich Syndrome Family Conference

The Wiskott-Aldrich Syndrome Family Conference provides an opportunity for families living with WAS to come together for a weekend of learning and fun.  It also provides an opportunity for people living with WAS to create relationships with others who share common experiences, therapies and feelings.


[FULL STORY]
 

Put a Face on PIDD!
Become a Plasma Center Visitor

Are you interested in helping to show the plasma center donors and employees the importance of the role they play in the lives of patients?  Then consider becoming a plasma center visitor!


[FULL STORY]
 

IDF Calendar of Events

Click the link below to see all that IDF has in store for 2010!


[FULL STORY]
 

Since You Asked
IDF Question and Answer

Q:  Does IDF have a financial assistance program? Our daughter was recently diagnosed with CVID.  We would like to get a second opinion at a teaching hospital, but we have no money to pay for the airplane tickets.

 

Q:  What do you think of high deductible health insurance plans?

 

Click on "Full Story" below to learn the answers to these questions.


[FULL STORY]
 

Primary Immune Tribune is sponsored by an educational grant from Talecris Biotherapeutics


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